For Families

Conditions and Diseases in the NICU: Patient and Family Handouts

Necrotizing Enterocolitis (NEC)

Spanish version

Patent Ductus Arteriosus (PDA)

Spanish version

Respiratory Distress Syndrome (RDS)

Spanish version

Transient Tachypnea of the Newborn (TTN)

Spanish version


Spanish version

Hypoxic Ischemic Encephalopathy (HIE)

Spanish version

Respiratory Syncytial Virus (RSV)

Spanish version

Gastroesophageal Reflux

Spanish version

Sepsis in the Newborn

Spanish version

Apnea of Prematurity

Spanish version

Retinopathy of Prematurity (ROP)

Spanish version

Jaundice in the Newborn

Spanish version

Hypoxic Respiratory Failure

Spanish version

Intraventricular Hemorrhage (IVH)

Spanish version


 Miscellaneous Family Information Links

The Children’s Heart Clinic-information on congenital heart defects for families

March of Dimes-useful information of prematurity and birth defects

American Academy of Pediatrics-Section on Perinatal Pediatrics-information for families

Children’s Hospitals and Clinics of Minnesota-Health Topics A-Z

Spare Key Organization provides mortgage assistance to families of critically or seriously ill children in Minnesota, Wisconsin, North Dakota and South Dakota.


Children’s Hospitals and Clinics of Minnesota: Families in the NICU

Children’s Hospitals and Clinics of Minnesota: “The Garden Of Hope: NICU St. Paul”

NICU Follow-Up Clinic

Many preterm and sick infants are at risk for developmental delays in early childhood.  Our comprehensive NICU Follow-Up Clinic at Children’s – St. Paul is specially-designed to assess your child at regular intervals and make recommendations to maximize your child’s healthy development.  Prior to your infant’s discharge from the NICU, we will make a referral to the clinic, if necessary.

Educational Handouts: “You and Your Premature Baby”

1 Month

2 Months

3 Months

4 Months

5 Months

6 Months

7 Months

8 Months

9 Months

10 Months

11 Months

12 Months


Other Handouts

Suggested Reading for Parents

AAP Premature Baby Milestones Brochure

Minnesota Preamturity Coalition Parent Handout: “Premature Babies: An Early Beginning”

Last Updated 2/22/13